Wednesday, January 23, 2008

Nice Work

Just yesterday I said that the meditation words of the day were "engraftment" and "remission." Did I not? Somebody must have been listening to me.

Here is the news I got this morning: I am 98% engrafted and they can find no signs of leukemia.

The test for engraftment was performed very early. They generally do this test at about a month out from transplant, and I am only at 19 days. They were concerned because they thought they had seen some leukemia "blasts" in a blood test. They have since decided that this was a false positive, because I have nothing in my biopsy or in any subsequent blood tests. In any event, this is very early, very good news. When the patient is not in remission (I was not) it's common for transplants to fail because the disease interferes with the engraftment process. Apparently the horrible byzantine back-shelf chemo they gave me did enough of a number on my disease that I find myself with these great results.

The idea is that the new cells, which build a new immune system, can kick the leukemia's ass, which my own system was unable to do. My donor is a guy and I have taken to calling these new cells "The Boy." So, ideally The Boy takes over and does serious damage to the disease if it tries to make a comeback. I have something called "refractory" leukemia, which means that it's sneaky and it hides and relapse is inevitable without radical measures like this one.

We still have many rivers to cross, but this is a major hurdle. Transplant is no joke so I have to expect that I may have various problems down the road, and we'll never stop worrying about relapse. I have decided to just go ahead and be goddamn happy, though, because why the hell not?

I'm feeling good and there's talk of springing me by the end of the week.

Thanks for all the love and support, as always. I'm so happy to have something really good to report.

xxoo L

9 comments:

Joseph Mahan said...

LEAH!!! HORRAY!!!!!!!!!!!!!!!!!!!! FANTASTIC NEWS!!!
I am THRILLED!!! BLESS YOU. I LOVE YOU. ANNNNND you're "being sprung!!!" SO very Happy for You!
LOVE LOVE LOVE...
;-) Joseph

Joseph Mahan said...

P.S.- "THANK Friggin' DOG!"

Anonymous said...

YAY! I am so happy and relieved. I cried so much from sheer relief and joy that I got completely dehydrated and then I made all my animals sick from giving them waaaay too many celebratory treats. HAPPY DUCK DANCE WOOOO! You are Made Of Awesome.

Anonymous said...

Yippee! Congratulations

Anonymous said...

This is the best news I have ever heard in my life. I am SO FUCKING HAPPY, I can't stand it!! LOVE LOVE LOVE to you...XO

Anonymous said...

Leah, this is GREAT news, and you all deserve all lot more where this comes from--wherever it DOES come from... hmmmm. Actually, I'm one of those people who believe all this (the bad and the good) is pure luck. Anyway, enough of my philosophizing. It was very dear to see the photos of Neal--thanks for posting them. And Barbara and I will keep sending the good energy you way, daily. A hug, Margaret.

Joseph Mahan said...

LEAH...

As "excited" as you are for me on my voyage to Paris...I am even more excited for YOU for your voyage to Sunnyside, Queens!

I Love You. You are an inspiration. I will be thinking of YOU while I ramble around Gay Paree (and Jacques' "rambling" Studio Apt.!!!)

XOXO,
JOJO

Anonymous said...

This is just fabulous news. When do I get to come eat grilled cheese with you???

Anonymous said...

Hi, Leah,
even not knowing you personally, I'm so happy to hear it's going on! I did worry with one of your friends, and heard a lot about your situation.
I have goose pimples all over, because I know where you had gone through (not perfect english, sorry). I cross all my fingers for further success.
A friend from Germany